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• What does the study involve?

  PAH patients will be seen at their local centre by their service team but they will have additional bloods and urine samples taken.
  
  Relatives of PAH patients will be seen every six months at their nearest PAH centre.

  Cohort overview

  Patients
  Patients diagnosed with idiopathic, anorexigen-induced or heritable PAH
  
  Relatives
  Relative has a family member diagnosed with idiopathic, anorexigen-induced, or heritable PAH
  
  Ages eligible for study: 16 years to 80 years
  Genders eligible for study: Both
  Accepts healthy Volunteers: No
  Sampling method: Non-probability sample
  

  Latest news

  Estimated enrollment: 3600
  Study start date: February 2014
  Estimated study completion date: August 2018
  Estimated primary completion date: August 2018 (final data collection date for primary outcome measure)